Palliative Care in a Tribal Settlement: Developing a Community-Centred Model
Our project aims to bridge the equity gap in accessing palliative care by focusing on those who live on the margins. It works with chronically- ill patients and their family members from the tribal (Bhil) communities living in a remote part of Maharashtra, with limited access to healthcare. It demonstrates that communities can be capacitated to respond to distress arising from serious health suffering, through management of physical pain, psycho-social and emotional pain, and financial distress.
Raghu Roy Founder Director: M&E frameworks; financial and human resource management
Sonalini Mirchandani Director & CEO: Design and implementation; stakeholder relationships; advocacy with government and civil society
Shabana Patel Founding Member: Advocacy for People Living with HIV and chronic illnesses
Aparna Sah Senior Associate: Managerial oversight, documentation; database management, donor reporting
Parag Pevekar Associate: Psycho-social support to patients and caregivers
Yateen Sawant Team Lead: Weekly route planning, administration, liaison with doctors
Manoj Pandey Lead, IT: Virtual database development, programme analytics, website management
Dasharath Shinde, Rahul Thakur, Saku Padvi: Nurses: Patient care, pain and symptom management; training of caregivers
Sameer Vasave, Vasant Vasave Social Workers: Psychosocial support; social security schemes
